Contact us

Thank you for your interest in finding out more about the PH1 Study.

How will Alnylam use my personal contact information?

Alnylam will use your personal information only for the purposes of informing you about our PH1 clinical research studies, or to ask for general information about your condition that may enhance our research program.

With your permission, we may provide your details to a PH1 Study doctor to allow them to contact you about potential PH1 Study participation.

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Am I committing to anything by providing my personal contact information?

By providing and submitting your information to Alnylam, you are agreeing with the terms and conditions in our privacy policy. Submission does not oblige you or the person or child with PH1 to participate in our studies, and Alnylam cannot guarantee that you/they will be able to take part in the study.

You can arrange for your information to be deleted from our database at any time by contacting Alnylam at Please make a note of this email address.

You can also contact us directly:

Toll-free within the U.S.: (866) 330-0326
U.S. and international: +1 617 575 7400